Wednesday, March 31, 2010
Monday Chandlers Dr ordered a CT Scan to make sure there was no bleeding or blockage in his brain causing the Hydrocephalus. When the the radiologist came back with his report he said there was no obstructions and he felt that it was not caused from hypoxia or lack of oxygen at birth, but that Chandler had meningitis in utero. So the Dr then ordered a lumbar stick to draw cerebral spinal fluid and test for any signs of infection. The sugar levels were elevated which would indicate infection. This would also explain my prematured labor. At this point the infection was cleared up because of all the antibiotics he had been on since birth. I am not sure what this all means concerning the hydrocephalus but he should have another head ultrasound soon and maybe we will have some more answers.
Sunday, March 28, 2010
This morning we were given the news that Chandler has Hydrocephalus. Which means that he has excess fluid in his brain. This was caused from the lack of oxygen during his traumatic delivery. At this point there is no pressure or swelling. There is no way to determine the extent of the damage right now or in the future. There is nothing that can be done to decrease the fluid or prevent the condition from worsening. We can only continue to pray and rely on our faith and hope. Chandler is such a blessing in our life and we are so thankful for him. We are also thankful for all of our family and friends and your prayers and support.
Friday, March 26, 2010
Moving Forward Again
Chandler is getting better. His infection turned out to be pneumonia. It takes about 3 days for the culture to grow back enough to know exactly what is going on, but they put him on a broad spectrum antibiotic to kill what ever he had. He started to show improvement right away especially after a blood transfusion which pinked him right up, and in the past week he pooped (which is great for his digestive system and jaundice), He was taken off the biliruben lights. He was taken off the high frequency ventilator and put on the conventional ventilator. Which is good because he is able to move around more and does not have to be sedated. They also started feeding him again and we will see how that goes. Hopefully I will get to hold him again soon. Even though he has been improving rapidly, it has been a difficult week because we went so far back. I know that through prayer we have been able to make through all of this. Thank you all for keeping us in your prayers.
Thursday, March 18, 2010
Chandler's rough night
As many of you know Chandler has had a bit of a setback and could really use our prayers. Last night his oxygen levels dropped way down and they determined that he has an infection of some kind. They put him on some different medications, including blood pressure meds and two different antibiotics. They also put him back on his high level ventilator. His color was really bad last night and he didn't look well at all. His little feet were cold because he was not getting the circulation that he needed. Whenever anyone would touch him his levels would drop even lower. His Grandpa was able to give him a blessing and this morning he is doing a little better. It is going to be difficult for his little body to now have to try to fight off this infection on top of everything else he is trying to do to get better, so please continue to pray for him and his family. So far the Lord has blessed us with miracles and we are so thankful.
Wednesday, March 17, 2010
Bad Day
Chandler has had a bad day, and is not doing well. Please continue to pray for him and the Paxton family.
Happy St. Patrick's Day!!
Here is the latest on baby Chandler. Yesterday he got kicked out of his private room with a view to the non-isolated NICU. There was another baby that needed the room so he is now in the regular NICU. They took out his ventilator yesterday but it was too much work for him to have to breathe on his own so they ended up putting it back in this morning. Yesterday they moved him into an isolet bed, so Lacie got to really hold him for the first time while they got him all set up so that was really special for her. They ended up moving him back into his regular bed though because it is easier for everyone to get to him and do the things they need to do. Lacie likes this bed better because it is easier to touch him and she doesn't have to reach through the little holes. His jaundice continues to improve. Lacie says they have him dressed up for St. Patricks day today, so maybe we will get some new pictures!
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